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Welcome to Coleson's blog. We've created it to keep friends and family updated on the journey we are about to embark on.. We appreciate your support and words of hope and encouragement during this time when it matters most.

Thursday, July 4, 2013

T-20 Happy and Peaceful 4th of July!

We can see the fireworks from our 4th floor room with a view (the windows are full length).  Thankfully Coleson is having a peaceful and restful second dose of Campath after having his ERT today.  He didn't eat much today and was overall lethargic but I'm hoping it means he will sleep better tonight.  He usually does after ERT but then again, he usually doesn't have a chaser of chemo! 
We made it into the RMH today and met another Hurler couple who we have been following.  There is also another Hurler child still in his post 30 day stay who I hope we will also get to meet.  I hope you all enjoyed your 4th.  I look forward to next year's when we can watch fireworks as a family hopefully over Lake Michigan.