|Not sure any actually made it into his mouth!|
|Looking Great at 100!|
|Grandma Great and her Greats!|
|And the with the Grands!|
|Cool in Daddy's Shades!|
|Did someone say Cake?!|
Coleson's last day of his first year of Pre-school was this week. Since there are kids moving on to Kindergarten next year they had a graduation and all the kids regardless of age/grade got to attend. I didn't use to be such a softy but I had tears in my eyes as they played the traditional graduation song and he accepted his diploma! Which he immediately tore. Peyton's last day of pre-school was last Thursday. They didn't have graduation but I too felt sad that she was leaving such a great school, Day Spring, and will be heading off to Kindergarten in the public school system next year. When we went to enroll her last week, she said she was very nervous about going to her new school. If I have to be honest, so am I! Looking forward to the 3 day weekend.
Coleson's story was featured on the ABC 15 website this past week to promote Be The Match Donor Registry. http://www.abc15.com/news/be-the-match/blood-transplant-was-phoenix-3-year-olds-only-hope . I also attended a lecture from a Neuropsychologist sponsored by Genzyme, the company that distributes the Drug (Aldurazyme) that Coleson is infused with weekly. I got to meet another MPS I mother that I have only emailed with until now. Her son has the adolescent onset form of the disease and an adult women who has the adult onset form of the disease. It was good to connect with others in the valley (there are so few of us) that are living with disease. Well, that was our week! Hope you all enjoy or enjoyed your holiday weekend.